Posts Tagged ‘Neurology’

Happy Monday!

Tuesday, June 8th, 2010

Oh my goodness was it hot today! It was almost 100 degrees outside. Man it sucked.  We went on a walk today with my dad and by the time we were half way done I was covered in sweat. So gross. But much needed. I gained 6lbs last month. Ick. Not the greatest but with Troy & Rachel I had already gained 20 lbs. So 6 compared to 20 is better but still its way to early for me to gain 6lbs…… Now my OB has me due on October 26th but according to the date of my last period I’m due October 30th. Yeah its only a 4 day difference but still which one do we go by??  So for now I’m going by October 30th as my due date. I just hit 19 weeks on Saturday.

I have to say I love technology! I’m sitting in bed on my netbook writing this while watching Lie To Me. So far its really good! Although I am upset that Secret Life of the American Teenager is on at the same time as Lie To Me.  But I plan to watch Secret Life online at Fox Family tomorrow. :)   But this just blows me away that I can sit here and type while watching the show.

I went to schedule Rachel’s second MRI & found out that they wanted to do an un-medicated MRI. They wanted to have be fully awake for the MRI & lie still the entire time…. There is no way she would go through with that.  It would freak the shit out of her if we even tried.  There was no way I was going to let them do that to her. She already has problems trusting anyone she doesn’t know.. She would be ten times worse if we let the doctors do this. I instantly said no way! She’ll only be 18 months old!!! My 2 year old won’t lay still for 30 minutes at home!! And you want my 18 month old to be FULLY awake and put into this machine?? NO! NO! NO!  So the end result is that the MRI will be medicated. 

When I was on the phone with the Neurology department the lady I was talking to me told me that they do this kind of MRI to 18 month olds all the time. That scares me! There are parents that would do that to their young toddlers? What kind of parent could do that to their child? I know the test is important but we were told that if shes awake or ‘asleep’ doesn’t affect the test results. So why put your child through the stress of it??

Its all coming back

Wednesday, May 19th, 2010

So May it almost over. Then next month is June. And while I can not wait for Eclipse to come out I am SCARED to death of what July will bring to our family. Some time in June I will be scheduling Rachel’s 2nd MRI and neurology appointment. She will also have another genetics appointment. I did not want her to do the first MRI and I so do not want her to do another. I’m so afraid that the fluid in her head will be worse then what it was before and she will have to have the fluid drained. I do not want my (now) 15 month old to go through that. Plus what if something else is wrong? What if there is something else that has to be corrected? I am so scared of this visit. I’m scared of what the out come may be.  I’m hoping it will be good but I can’t help but think “what if its not”? I can now clearly remember the mess I was before her last MRI and how I cried when I got the phone call that Rachel had to see a neurologist and then they set the appointment up for that WEEK. I knew something wasn’t right. We usually have to schedule appointments at least two to three weeks in advance.  I don’t want to go through this again. I know I don’t have a choice.  That I have to be strong and that this is all probably for nothing.

We have gotten so lucky with Rachel. Things could be ten times worse then they are now. Will this lucky streak last for a bit longer? Or will it run out? I hate not knowing. I’ve known in the back of  my head since February that she had to go back. She had to do another one. But I just didn’t want to accept it. It wasn’t happening yet so it wasn’t real. But its real.